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Bob Saget privately assisted a 9-year-old patient with scleroderma and her family in her later years

Two years before his death, Bob Saget quietly offered his support to a family whose 9-year-old daughter suffers from scleroderma, the same disease that claimed her sister’s life in 1994.

Saget was a tireless advocate for those fighting the disease, constantly organizing charity events and working on the board of directors of the Scleroderma Research Foundation. On several occasions he noted how determined he was to find a cure after being personally affected by the disease. The comedian’s sister, Gay, died at the age of 47 from the disease years ago.

According to TMZ, part of Bob’s job to fight the disease was to contact a girl named Sophie Anne, who was diagnosed with the disease at the age of 7. Saget is said to have sent the little girl personalized videos offering her comfort, support and hope that a cure may be ahead.

The outlet notes that Saget has understood better than anyone that scleroderma affects not only the patient, but the whole family. As a result, he also made himself available to the girl’s sister and parents. He spent over 30 minutes on the phone with Sophie’s sister so that she could write an article about him titled “Bob Saget: My Everyday Hero”.

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Bob Saget died suddenly at the age of 65.
(Emma McIntyre / Getty Images)

Months ago, while Saget was performing in North Carolina, he gifted Sophie’s parents, Martha and Jeff, tickets to one of his shows. In addition to paying for their tickets and meals, he invited them backstage after the performance.

The “Full House” actor has clearly kept in touch. In early December, a few weeks before his unexpected death, he shared a video on his Instagram that was a repost from the Scleroderma Research Foundation page featuring Sophie discussing the disease.

“Sophie Anne is one of the reasons I will sit on the board forever and fight to find the cure for the scleroderma disease that claimed my sister’s life”, captioned Saget before adding the original text of the foundation.

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“Sophie Anne and her family are full of hope, and they inspire us every day to stay focused on finding a cure. With your support, together we can make a meaningful difference for Sophie Anne, her family and everyone else. who are affected by this disease, “the post continued.

Actor / comedian Bob Saget was a tireless advocate for scleroderma before his death.

Actor / comedian Bob Saget was a tireless advocate for scleroderma before his death.
(Michael Tran / FilmMagic)

Saget served on the board of directors of the San Francisco-based organization for 25 years. The foundation paid tribute to the actor on his website: “It is with a very heavy heart that we mourn the loss of our dear friend and member of the board of directors, Bob Saget. Bob was a champion of patients with the disease. scleroderma all over the world since 1991 when he first became involved with the Scleroderma Research Foundation, even before his sister Gay lost her battle with the disease. ”

Saget participated in the foundation’s fundraising event called Cool Comedy-Hot Cuisine, according to its website. This was before her sister was diagnosed with the disease.

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Scleroderma means “hard skin”. According to health experts, it is an autoimmune disease that causes inflammation of the skin, which then causes the body’s immune system to make too much collagen. Health experts told Fox News the disease varies in severity and speed of progression.

Bob Saget helped a 9 year old patient with scleroderma before his death.

Bob Saget helped a 9 year old patient with scleroderma before his death.
(Paul Archuleta / FilmMagic)

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“Scleroderma (aka systemic sclerosis) is a chronic autoimmune disease characterized by progressive thickening, tightening and hardening of the skin,” Dr. Wendy Chi, rheumatologist for the Mount Sinai Health System in New York, told Fox News. York. added: “It usually starts on the hands and face, but can spread to involve the extremities and trunk in some patients.”

Amy McGorry of Fox News contributed to this report.


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